Our Scientific Advisory Committees include a consumer representative to ensure research aligns with patient needs and perspectives. Read what Murray Turner, CEO of Psoriasis Australia, has to say about the Australasian Dermatology Registry. THE AUSTRALIAN DERMATOLOGY REGISTRY – A PATIENT PERSPECTIVE By Murray Turner CEO of Psoriasis Australia Being a patient diagnosed with psoriasis […]
MEET OUR PSORIASIS CONSUMER REPRESENTATIVE Read More »
Real-world dermatology research is crucial for improving patient care by enhancing the understanding of skin disease, improving treatment strategies, monitoring of current and emerging treatment, bridging gaps in evidence and supporting regulatory decisions. The Australasian Dermatology Registry encourages research by providing de-identified registry data to any participating clinician through the data access policy. The
USING THE REGISTRY FOR RESEARCH Read More »
The Australasian Dermatology Registry team is gearing up to present at the upcoming Australasian College of Dermatologists 8th Rural Dermatology Meeting, on “Rural patients within the Australasian Dermatology Registry.” This presentation will explore how registry data can be used to compare rural, regional and metropolitan patients’ demographics and outcomes to identify, where additional support is
ACD RURAL DERMATOLOGY MEETING 2024 Read More »
In May 2024, the Australasian Dermatology Registry team attended the Australasian College of Dermatologists Annual Scientific Meeting (ACD ASM). Their presence was marked by a dynamic booth that served as a hub for engagement with dermatologists, facilitating the enrolment of new clinics and offering comprehensive training on the online registry platform. The ACD ASM provided
ACD ANNUAL SCIENTIFIC MEETING 2024 Read More »
About a million people in Australia will be diagnosed with a skin condition with many cases remaining throughout the individual’s life. Despite the frequency of skin conditions there is limited information regarding the management, treatment, outcomes and quality of life of people living with these conditions. The Australasian Dermatology Registry captures real world data to
FIRST 500 PARTICIPANTS ENROLLED Read More »
Welcome to the first newsletter of the Australasian Dermatology Registry (ADR), which ‘went live’ in September 2023. It is with considerable pride that we present our first update since the official launch. There has been an enormous amount of work behind the scenes since the decision was made to take the next step in the
NEWSLETTER MAY 2024 Read More »
Clinical registries have been shown to improve patient outcomes by monitoring the quality of care provided, evaluating current and emerging treatments, providing feedback to participating clinics, and supporting clinical research. The Australasian Dermatology Registry has been developed to provide real-world evidence, initially for psoriasis, atopic dermatitis, hidradenitis suppurativa and vitiligo, to help improve patients’ care
REGISTRY REPORTING AND ACD CATEGORY 3 CPD Read More »
The Australasian Dermatology Registry (ADR) is a national collaboration between dermatologists to capture real-world data enabling monitoring of current and emerging treatments, and provides a platform for dermatology research, helping dermatologists provide the best care to their patients. The registry is facilitated and coordinated by the Skin Health Institute. Despite the frequency of skin conditions such
AUSTRALASIAN PSORIASIS REGISTRY REIMAGINED Read More »
