WELCOME
By A/Prof Chris Baker
Co-Convenor of the Australasian Dermatology Registry, Co-Chair of the Psoriasis Scientific Advisory Committee and Director of Dermatology at St. Vincent’s Hospital Melbourne
As we venture into October, we’re excited to welcome you to the special second edition of the Australasian Dermatology Registry newsletter, on this occasion focused on psoriasis.
The Australasian Dermatology Registry (ADR) is a reimagining and expansion of the Australasian Psoriasis Registry (APR) which successfully recruited over 2,500 patients from 109 clinics across Australia and New Zealand. In an advancement on its predecessor, the ADR is designed to minimise and streamline data entry through user-friendly patient and clinician portals, and provide real-time reporting to clinics.
Treatment of psoriasis has seen significant advances in the last decade with the addition and refinement of biologic therapies, the introduction of new oral advanced targeted therapies, and new formulations of topical treatment, offering improved safety profiles and focusing on long-term disease management and gains in patient quality of life. With these advancements, local real-world evidence has become increasingly vital for guiding treatment decisions and improving patient outcomes. This is where the ADR plays a crucial role.
By capturing comprehensive longitudinal data from clinics across Australasia, the ADR provides dermatologists with invaluable local real-world evidence to inform clinical decision-making and to facilitate advocacy for our patients.
In addition to monitoring and evaluating current and emerging treatments, the ADR is a research platform offering de-identified data access to all participating clinics. In this edition of our newsletter, we highlight some of the exciting research studies currently utilising ADR data.
As participation in the registry continues to grow, so does our capacity to tackle meaningful research questions and enhance patient care. We encourage all dermatologists to explore the ADR and discover how even a small contribution can make a large impact on the quality of care we provide to our patients.
Download Clinician Newsletter October 2024