Information for clinicians

Skin disorders rank sixth in the non-fatal burden of disease within Australia and fourth world-wide.  This is likely an underestimate, as common conditions such as melanoma and lupus are classified as cancer and musculoskeletal, respectively, and there is under-reporting for milder conditions in patients managed with over-the-counter products.

Despite this burden of disease for skin disorders, local data pertaining to the management, treatment, outcomes and quality of life of this patient group are limited.  Randomised trial data are available, but data are often from small cohorts of patients, without any comorbidities and with limited prior treatment, whereas most patients seen in the clinic have tried other treatments previously, are on concomitant therapy and have other comorbidities.

The Australasian Dermatology Registry will capture real world data enabling monitoring of current and emerging treatment and provides a platform for dermatology research.

What participating involves

Participants can be recruited to the registry in the waiting room via a QR code or at a time that is convenient to them via the registry brochure.

The online participant portal allows patients to read the participant information sheet, provide electronic consent and complete demographic, family history, lifestyle and quality of life questionnaires.

Data entry required by the clinic is minimal. Clinicians are only required to complete disease severity scores e.g. PASI, EASI and current treatment data.

Benefits of becoming a participating clinic

By participating in the registry, your clinic gains access to current registry analyses and clinic-level reports that compare your cohort with the registry. Dermatologists who contribute data and review reports can claim category 2 and 3 CPD points for these activities.

How to become involved

If you are interested in your clinic participating in the registry or would like more information, register your interest here.