Accessing data for research

De-identified data is available to any clinics that contribute data to the registry.

To request data for a research study, we recommend that the researcher contacts the registry
or (03) 9623 9470 to discuss their individual study prior to submitting a Data Access Form.  This will help the researchers identify if they require additional ethics approval for their study and if a study is already being completed by another group, as well as discuss what data is required and the data limitations.


All data requests are reviewed by the appropriate scientific advisory committee for scientific merit and study design, before the de-identified data is released to the researcher.